What is Sickle Cell Disease
Sickle Cell Disease (SCD) is a genetically inherited blood condition affecting the blood haemoglobin. There are different types of the disease, including Sickle Haemoglobin C disease, and Sickle Beta Thalassaemia, and Sickle Cell Anaemia being the most common. It is hereditary and not contagious. It is estimated there are over 10,000 adults and children with sickle cell disease in Britain at present.
There is no basic cure for SCD, and people who suffer from it can only manage the symptoms of the disease. Treatments available include pain relief, fluids, blood transfusions and bone marrow transplants, and enhance their condition and improve their quality of life.
To find out more about Sickle Cell Disease, here are some useful organisations.
Sickle Cell and Thalassaemia psychology
Sickle Cell Society
UK Thalassaemia Society
NHS Haemoglobinopathy Screening Programme
Sickle Thalassaemia Association of Counsellors
Centres in London
Brent Sickle Cell & Thalassaemia Centre
Central Middlesex Hospital Acton Lane NW10 7NS
Tel: 020 8453 2050
Camden & Islington Sickle Cell & Thalassaemia Centre
Old Royal Northern Hospital Site,Tollington Way, London N7
Tel: 020 7530 2050/2052 Fax 020 7530 6005
City & Tower Hamlets Sickle Cell & Thalassaemia Service
Dept of Haematology, Royal London Hospital, London E1
Tel: 020 7377 7000 Ext. 2518
Sickle Cell & Thalassaemia Centre
316-320 Whitehorse Road, Croydon, Surrey CR0
Tel:020 8251 7229 Fax 020 8251 7248
Ealing Sickle Cell & Thalassaemia Centre
Windmill Lodge West London Healthcare NHS Trust, Uxbridge Road, Southall, Middx. UB1
Tel:020 8967 5022 Fax 020 8967 5248
Greenwich Sickle Cell & Thalassaemia Service
Add:Plumstead Health Centre, Tewson Road, London SE18
Tel: 020 8316 5106
The Sickle Cell and Thalassaemia Support Group of Barking, Dagenham and Havering
Add:Community House, 19/21 Eastern Road, Romford, Essex RM1 3NH.
Tel: Cecilia Shoetan on 01708 769525 or 07737 295126.
Sickle Cell & Thalassaemia Centre
Homerton Hospital, Homerton Row, London E9
Tel:020 8510 7313/7412 Fax: 020 8510 7323
The George Marsh Sickle Cell & Thalassaemia Centre
St. Ann’s Hospital St Ann’s Rd, London N15
Tel:020 8442 6230 Fax 020 8442 6575
Sickle & Thalassaemia Centre
Plaistow Hospital, Samson Street, London E13
Telephone 020 8586 6262/6266
Sickle & Thalassaemia Service
Richford Gate Primary Care Centre, 49 Richford Gate, Richford Street London W6
Tel:020 8237 2980 Fax: 020 8237 2986
Wandsworth Sickle Cell & Thalassaemia Service
Balham Health Centre 120 Bedford Hill Balham London SW12
Tel: 020 8700 0615/0616 Fax: 020 8700 0634
Waltham Forest Sickle & Thalassaemia Centre
St James’ Health Centre St James’ Street London E17
Tel:020 8520 0921 Fax:020 8520 9330
More Sickle Cell Organisations
OSCAR Trust
OSCAR Trust Limited 5 Lauderdale House Gosling Way Brixton London SW9
Tel: 020 7735 4166 Fax 020 7820 9594
Sickle Cell Amnemia Relief (SCAR)
Sickle Cell Anaemia Relief PO Box 88 Barking Essex IG11
Tel: 020 8514 3934
Sickle Cell Society
Sickle Cell Society 54 Station Road Harlesden London NW10
Tel:020 8961 7795
Sicklewatch
Sicklewatch African Caribbean Cultural Centre 9 Clarendon Road Hornsey London N8
Tel: 020 8888 2148
UK Thalassaemia Society
19 The Broadway Southgate London N14
Tel: 020 8882 0011 Fax 020 8882 8618